A Nova Scotia woman who needs a double lung transplant says she’s trying to stay positive as COVID-19 threatens her ability to have life-saving surgery.
Karen Spencer, who lives in North Kentville, was supposed to go to Toronto in April for an assessment that would determine when she’s officially put on the transplant list.
The 54-year-old has idiopathic pulmonary fibrosis and depends on oxygen. A year ago, she caught a superbug and learned a transplant would be her only option.
“It’s pretty terrifying, I’m pretty scared,” Spencer said of the novel coronavirus. “I’m scared I’ll catch it and this time it will kill me.”
Spencer learned Tuesday that her trip to Toronto General Hospital was off. The hospital, which handles nearly all the lung transplants for patients from the Atlantic region, has paused all lung transplant activities, except for quickly deteriorating patients.
But Spencer’s specialists have found a way to keep her case moving forward. She said they plan to have virtual appointments and speak to her over the phone or by video chat to do her assessment. She’ll also have a procedure done at the QEII hospital in Halifax in the coming weeks.
She said the pandemic is taking a toll on her mental health.
“Thankfully, I’ve got my family that keeps me in good spirits and friends too,” she said. “There’s times though that I don’t have a good spirit. I think about ‘What if?’ and I’ve got to learn not to think that way.”
The virus is creating a whole new set of hurdles on an already difficult situation.
Her workouts at the hospital have stopped, and she can only go outside to walk under specific weather conditions.
A benefit show that was supposed to help cover her expenses was cancelled. Her family created a GoFundMe campaign to see if that might help.
“But with the economy right now, I don’t expect anybody to donate right now … and I just pray to god that something happens good between now and then.”
Not only that, if Spencer does get approval to go to Toronto, she’ll have to fly and she’s worried about potential exposure to COVID-19.
It’s a nerve-wracking time for Spencer’s family, many of whom are high risk with respiratory problems.
One of her nieces has cystic fibrosis. Another niece, Natasha Vaughan, has scarring on her lungs from blood clots.
Each branch of the family is now isolating in their homes, cut off from one another.
Vaughan hopes people realize that families like theirs are the ones medical experts are referring to when they tell everyone to stay home.
‘Her life is hanging in a balance right now’
She said the sooner people listen, the sooner her aunt can get to Toronto and wait for her transplant.
“Basically, her life is hanging in a balance right now because we don’t know what’s going to happen,” said Vaughan.
Vaughan also has a message to those who are practising social distancing.
“We can’t thank you enough,” she said. “You are potentially saving our lives. My sister’s life. My aunt’s life.”
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